RDLA's July Legislative Webinar and In-Person Meeting @ Rare Disease Legislative Advocates, Washington [19 July]

RDLA's July Legislative Webinar and In-Person Meeting


10
19
July
12:00 - 13:00

 Facebook event page
Rare Disease Legislative Advocates
430 First Street NW Suite 440, Washington, District of Columbia 20001
Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community.

Agenda:
1. Update on Healthcare Reform and ACA Replacement, Joel White, Founder and President, Horizon Government Affairs
2. Reagan-Udall Foundation’s Expanded Access Navigator, June Wasser, Executive Director, Reagan-Udall Foundation
3. The Food and Drug Administration Reauthorization Act (FDARA) Update, Ryan Hohman, Vice President, Public Affairs, Friends of Cancer Research
4. Funding for Research Programs in the FY18 Budget, Sara Chang, Director of Policy and Advocacy, Research!America
5. Orphan Product Extensions Now, Accelerating Cures and Treatments Act (OPEN ACT), Stephanie Fischer, Senior Director of Patient Engagement and Communications, EveryLife Foundation for Rare Diseases
6. Upcoming Events (In-District Lobby Days and RareVoice Award Nominations), Stephanie Fischer, Senior Director of Patient Engagement and Communications, EveryLife Foundation for Rare Diseases
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